Catch up with all of the latest posts about Anthony’s CF updates and the cystic fibrosis community!
In March 2023, my son’s CF care team at Nemours in Lake Nona introduced us to the Beads of Courage. The beads of courage is an organization that supplies and sells unique beads. Each bead helps to represent something the child goes through during routine medical visits. My son Anthony has CF (Cystic Fibrosis) and […]
Health and nutrition are vital for children and adults living with medical conditions. For this reason, health and nutrition play a vital role in Anthony’s life. My son is ten years old and has cystic fibrosis. It isn’t easy to manage so many medications. However, I always find a way to do things! Sometimes, it
Hello to my Cystic Fibrosis family! I am the Rose Up Ambassador for the North Central Florida Chapter in Orlando, Florida! Rose Up is a fundraiser for cystic fibrosis, which aims to spread awareness and raise funds for a cure. This Rose Up will take place virtually on October 24th, 2024. We are excited to
I recently started dance choreography and was thrilled to share how the Community Footprints Project, a transformative initiative that uses dance choreography as a healing tool, helped heal our internal scars. They Gave My Son Anthony Xavier His Voice (and Dancer Moves)! When you have a child with cystic fibrosis, you’re constantly managing treatments, doctor
Cystic Fibrosis Foundation Great Strides Walk at the Brevard Zoo: Photograph taken by Dawn Aiello Photography Hello, MLindawrites family! My mother, Anthony, and I had the incredible opportunity to participate in the Great Strides walk hosted by the Cystic Fibrosis Foundation at the Brevard Zoo in Melbourne, Florida, on May 4th, 2024! Anthony was born
