Cystic Fibrosis Community

Catch up with all of the latest posts about Anthony’s CF updates and the cystic fibrosis community!

Cystic Fibrosis Care: Update Post on Anthony!

Hello everyone! This cystic fibrosis care update is to let you know how Anthony has been doing recently.  It has been quite a journey these past 12 years. Anthony turns 12 next month on April 15th, and while I won’t say everything is perfect, we are incredibly grateful that solutions exist.  Between pulmonology, nutrition, allergy […]

CF Vests Worldwide – Helping Others With CF in Need!

When it comes to helping others, Rodrick Spadinger and his team get the job done! CF Vests Worldwide’s incredible mission is to help connect hearts while saving lungs for cystic fibrosis patients.  By donating used vests and medical equipment, you are saving someone’s life! Two years ago, I had the pleasure of emailing Rod after

Allergy Relief! The Magic of The Salt Room

The salt room is an excellent natural therapy for allergy relief. It can help alleviate lung symptoms related to most medical conditions, including cystic fibrosis. Managing cystic fibrosis presents daily challenges, including persistent cough, breathing difficulties, and growth issues, creating an anxiety-driven roller coaster for families.  As a parent, I understand the struggles of sleepless

Unique Beads of Courage That Tell a Powerful Story

In March 2023, my son’s CF care team at Nemours in Lake Nona introduced us to the Beads of Courage.  The beads of courage is an organization that supplies and sells unique beads. Each bead helps to represent something the child goes through during routine medical visits. My son Anthony has CF (Cystic Fibrosis) and

health and nutrition Kate Farms Shakes. Anthony smiling and holding his shake.

Health and Nutrition: Success With Kate Farms!

Health and nutrition are vital for children and adults living with medical conditions. For this reason, health and nutrition play a vital role in Anthony’s life. My son is ten years old and has cystic fibrosis. It isn’t easy to manage so many medications. However, I always find a way to do things! Sometimes, it

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